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Table 1 Summary of educational and training needs identified with the narrative literature review

From: Education on palliative care for Parkinson patients: development of the “Best care for people with late-stage Parkinson’s disease” curriculum toolkit

Stakeholders Educational and training needs (attitude, skills, knowledge) Literature
Patients and caregivers’ Learn how to navigate the PD journey Jordan et al., 2020 [14]
Being able to get personalized information Fox et al., 2017 [15]
Being able to choose the suitable palliative care setting Sandsdalen et al., 2016 [16]
Learn how to make decisions related to the place of death Moens et al., 2015 [17]
Patients Become knowledgeable of Advanced Care Planning (ACP) Connor et al., 2015 [18]
Comprehend what to expect and what PD management includes in the advanced stages van der Eijk et al., 2012 [19]
Caregivers Be trained to provide adequate care McLaughlin et al., 2011 [20]
Be informed about the availability and access to support groups and services Olsson et al., 2016 [21]
Learn how to cope with caregiver burden Schrag et al., 2006 [22]
Be taught how to handle the psychological impact Hasson et al., 2010 [23]
Be trained to manage emergencies Goy et al., 2008 [24]
Be informed in order to become a proxy for medical decisions Sokol et al., 2019 [25]
Get to understand the emotional, spiritual and bereavement domains Aoun et al., 2010 [26]
Comprehend death and be able to deal with it Fox et al., 2017 [15]
Be taught how to cope with pre-death grief Carter et al., 2012 [27]
Healthcare providers Be capable to efficiently communicate with patients and caregivers Tuck et al., 2015, Walter et al., 2019 [28, 29]
Be competent at information sharing Miyasaki et al., 2016 [30]
Be adept to provide primary palliative care Lum et al., 2020, Robinson et al., 2017 [31, 32]
Become highly skilled in pharmacotherapy Katz et al., 2018 [33]
Be able to guide shared decision-making around advance directives Robinson et al., 2018 [34]
Be knowledgeable of outpatient care models Tarolli et al., 2019 [35]
Comprehend the ethical challenges of ACP Sokol et al., 2019 [25]